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STROLO Star: Bree Labiak

“I've learned life is a lot like surfing. When you get caught in the impact zone, you need to get right back up, because you never know what's over the next wave... and if you have faith, anything is possible, anything at all.” - Bethany Hamilton

Recently the CFLF hosted one of our weekly STROLO Movie Nights (where we have a Netflix watch party and live chat) and we watched the movie, Bethany Hamilton: Unstoppable

Keys to a CF Life

How do you know that you’ve stayed too long for lunch? When the waitress presents you with the same, identical tab, twice.

The conversation, which had been fostered from various years of Facebook followings and interactions between me and Cystic Fibrosis Warrior Stephanie Santana, led to that overstay at an eatery near her town in the Florida Keys. I had admired Stephanie over time for her personality, her talent, her tenacity, and her zest for being unique. 

Easy Spring Pasta

There are two kinds of people, those who love pasta, and those who are wrong. Okay, okay, I know not everyone loves pasta, and that’s okay, I just don’t understand it!

This pasta dish has been a favorite of ours for the past couple of years, we enjoy it best outside on the patio when the weather is just right.

Feel free to customize this dish to make it your own and fit your tastes!

The Kids Are All Right: How My Kids Taught Me Resilience in the Age of COVID-19

It’s been thirty-eight days since my family has ventured out of the neighborhood. Thirty-eight days since the kids have shot hoops with their friends. Thirty-eight days since they’ve played catch, colored the sidewalk, or done anything with anyone even remotely their age. Thirty-eight days of Mom’s non-award-winning cooking, Dad’s mildly successful attempts at sibling mediation, and the keen knowledge that anyone approaching our end of the cul-de-sac is to be avoided at all costs.

Three Points in a Star

I view the process of any transplant as a miracle. Particularly a lung transplant. Perhaps it is because I underwent such a course. It is due to that procedure, I am still here. 

Perhaps it is because I know of others who have had lung transplants. It is due to that procedure, they are still here.

And perhaps it is because I know of others who did not have lung transplants. It is due to the absence of that procedure, they are no longer here.

This accounts for why a 3,300 mile, week-long voyage I drove in May 2019, had such a profound effect on me. 

Putting life on pause for COVID-19

We are months into the COVID-19 outbreak in the United States and we are all experiencing a range of emotions. Everyone’s experiences, emotions and thoughts are unique to their own situation. I’ve found myself to be weirdly prepared for this situation. No, I’m not a paranoid doomsday prepper but because having CF for 26 years has, in a way, trained me for this lifestyle change that we are all facing together.

Protecting Our Healthcare Heroes

For those of us with chronic illnesses such as cystic fibrosis, our experiences with healthcare providers are different than the typical professional relationship. Inpatient for weeks at a time, sometimes months; the hospital becomes a second home. Various staff sit with us in our pain, wipe our tears (or our butts), and bring laughter to our chaotic situations. These people are our family.

Love in the time of Corona

A few weeks ago the world shifted. In reality it had already been shifting for months, as the first case of coronavirus was reported on November 17th, 2019, in China. It would be months before people, myself included, understood the seriousness of it though, worldwide. But on November 17th while that was happening on the otherside of the world, we were celebrating my son’s second birthday. For the next three and a half months life went on as usual.

COVID-19 and the CF Community

We realize this is an unprecedented time in our nation, and across the world, as we face a pandemic which greatly affects so many people, those with Cystic Fibrosis are one of the most vulnerable. For people with CF, every precaution should be taken to reduce exposure and help prevent infection.

Bionic CF Warrior

Bionic is derived from the Greek root word “bios," which means life.

So, how many transplants does it take for someone to be considered a bionic woman?

Rae is the name of this Cystic Fibrosis Warrior. This bionic woman. This Bionic Cystic Fibrosis Warrior.


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