We realize this is an unprecedented time in our nation, and across the world, as we face a pandemic which greatly affects so many people, those with Cystic Fibrosis are one of the most vulnerable. For people with CF, every precaution should be taken to reduce exposure and help prevent infection. The Cystic Fibrosis Foundation has provided the community with information and answers to some of the questions you may have about COVID-19, and how to best prepare yourself and loved ones in these challenging times.
Furthermore, The Cystic Fibrosis Research Institute will be holding a Covid-19 Online Town Hall on Tuesday, March 17th, from 6:00-8:00 PST, with important information and discussion for the CF Community. We encourage you to tune-in and learn how to best protect yourselves and your family.
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All CFLF events through the end of May are suspended until further notice.
The CFLF is currently having discussions as to whether or not we will continue to hold our 13th Annual Champ’s Challenge for Cystic Fibrosis this Summer. We are exploring the possibility of hosting a virtual event for this year, and will keep our CFLF supporters informed with our decision.
This time of uncertainty is already proving to be very stressful for many of us in the CF community. It's important to remember to take care of yourself, both mentally and physically in the days ahead, through exercise, yoga, meditation, etc. There are many online recreational activities and free online classes that are tailored to people with cystic fibrosis, such as CF Yogi and Beam CF. These are exercises you can do without having to leave your home, which can be helpful for both the mind and body.
We encourage you all to educate yourselves as much as possible about COVID-19 and take the necessary precautions to protect yourself and others. Please tune-in to the online CFRI Town Hall on March 17th for more information and discussion about the Coronavirus, and refer to the Cystic Fibrosis Foundation for more up-to-date information pertaining to the CF Community.
The CFLF would like to send our sincere well-wishes to everyone in our CF Community, and beyond. Please know there are many organizations and individuals coming together to help each other in these dire times. We will continue to update you with news and resources for the CF community as the situation develops.
We will get through this challenging time together!
Help Others Live STRONGER and LONGER-
Julie Winn is a long time volunteer turned contractor for the CFLF, providing social media and marketing support to the organization. She has attended many of CFLF Fundraising events over the years, and is also active with other non-profit organizations in Vermont. She lives in South Burlington with her spouse and child and enjoys hiking, swimming, traveling and spending time in the great outdoors.
***Views expressed in the CFLF Blog are those of the bloggers themselves and not necessarily of the Cystic Fibrosis Lifestyle Foundation***
***Please speak with your physician before making any changes to your CF management***
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