Dear Fall,
We’ve always had a bit of a rocky relationship, haven’t we? One day, we’re the best of friends, giggling over pumpkin spice lattes and cozying up to the fire. The next, we are mortal enemies who battle over the November gray and impending coughs.
We’ve not always been this way. Years ago, you, Fall, were one of the most wonderous times of the year for me.
And then, my young daughter was diagnosed with cystic fibrosis, and my relationship with you, Fall, changed overnight. Like those pictures that when looked at one way show a pretty girl and when looked at another way show a haggard woman. At first glance, they are the same, but upon closer look, they are altogether different.
After CF entered our lives, your beauty eluded me. Your memories became just that. Memories. As summer slipped away and you held out your blustery hand, my nerves tightened like a string a musician has tuned one turn too much. Summer brought me freedom. You, Fall, brought a deep and bitter sigh. Gone were your fanciful gifts and scents and sounds. Now I just heard wet coughs to be avoided at every turn and saw hands rubbed raw from washing.
Birthday parties and holiday get-togethers once anticipated were now strategically maneuvered to avoid anyone who could get my daughter sick. For this, I hated you, Fall. You robbed me of my freedom and turned me into someone I did not like. Someone not fearless but fearful, who couldn’t control you no matter how I tried.
Until...
I realized that while I couldn’t control the world around me, I could control my attitude. I could choose to be hopeful and playful and to appreciate the small moments this Fall rather than waiting for the big ones to hit.
To help with this, my daughter’s doctor helped me to build a cold-and-flu season plan that is balanced and manageable. She started by popping the proverbial bubble that I’m sometimes tempted to put around my daughter and reminded me that school, parties, and everything in between should be enjoyed as much as possible this Fall.
If the flu is going around school, it’s okay to skip a few days and wash hands like a boss. If someone visiting our home is sick, it’s okay to ask for a rain check. But it is not okay to miss out on Fall’s joy by avoiding activities or mentally counting down to the next round of Bactrim.
This year, we are to embrace you, Fall, with a balance of tempered caution and wild-hearted enthusiasm.
And so, I have again purchased your scented soy candles.
What do you say, Fall? Should we make another go of it?
P.S. It would be great if you wouldn’t run hot and cold this year. You know I hate your mood swings.
P.P.S. Please tell your wingman Winter to beat it by April. Like all loves, it’s wise not to overstay one’s welcome.
Laura Spiegel is the mother of two wonderful kiddos, one who has CF. She lives in Indianapolis and enjoys a good book, a great meal, and nightly dancing in her kitchen. Laura is also a member of the CFLF Board of Directors. She can be contacted at lauraspiegel7@gmail.com
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***Views expressed in the CFLF Blog are those of the bloggers themselves and not necessarily of the Cystic Fibrosis Lifestyle Foundation***
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