Cystic Fibrosis is a relentless disease. Every day with Cystic Fibrosis is a fight. Every day you enter the ring with your opponent, it’s the exact same opponent that knocked you out the day before. You know your opponent very well, you’ve been facing each other for years. You go toe to toe, sometimes for several rounds. Once in a while you think you may have the upper hand but your opponent is sneaky and tends to get you out of nowhere. You start to slip up, the punches are coming at all angles, blow after blow. You know you’re in trouble. You go down. The whistle blows. It’s another knockout. Some spectators are worried about you but those who are familiar with the sport know the routine and know what comes next. It’s time to seek medical attention. Eventually you’ll start training again and hopefully you put some weight on this time because whether you like it or not, it’s time to go back in the ring. There’s another fight. Your opponent never quits and neither do you.
Cystic Fibrosis is the hardest fight you’ll ever have. It’s also the most meaningful fight you’ll ever have. I think it’s important to know why you’re fighting and who you’re fighting for, whether it’s for yourself, your family, or whatever drives you to continue the uphill battle.
First and foremost it’s my parents. They have sacrificed so much for the sake of my brother Ray and I. My dad worked his butt off as a police officer to ensure we had the best health care coverage possible. My mom put her teaching career on hold to take care of us at home until we were old enough to attend school. She may have studied elementary education in college but like many CF parents, she has earned an honorary nursing degree by caring for Ray and I.
My biggest inspiration for the past 17 years has been my brother Ray. Ray passed away in April of 2001 from a non CF related issue. He and I were very close despite having a five year age gap. We were the biggest trouble makers together and our number one goal in life was to have fun.
I think a huge part of what keeps my health both mentally and physically in line, is that I focus on other things besides my health. It’s not always about CF. I have many interests that can consume my attention. I enjoy snowboarding, biking, hiking, attending stand-up comedy shows, seeing live music, eating my weight in Mexican food and I am lucky enough that I genuinely enjoy my job. I am beyond thankful to have such an amazing group of funny, smart, driven, and entertaining friends.
Last but not least, my goofy and caring boyfriend Ryan! My boyfriend first started off as my friend. I made sure he had a full understanding of what exactly CF and diabetes was before we started dating. Ryan has a good head on his shoulders and views the world differently than most people which I love. He brings humor and excitement into my life. Without getting all mushy, I think the best way to put it, is that Ryan is good for me. Sometimes he’s the one pushing me to stay active in life and other times he’s the one telling me to slow down. He’s flexible and understanding when it comes to me and an unpredictable disease. I’m lucky to have him and I know he’s a huge reason for my drive.
Everyone with Cystic Fibrosis knows, this disease is a lot to handle to say the least. The daily medications morning and night, the hours of airway clearance treatments we do for our lungs each day, constant cleaning and ordering medical supplies and equipment, weird side effects to antibiotics, hospital stays, monthly doctor visits, the list goes on and on and it never ends. I would say Cystic Fibrosis is a fulltime job except we don’t clock out once we hit forty hours for the week, we don’t get weekends or holidays off and our “sick time” is all used up. It’s easy to become bitter, overwhelmed and to lose your drive. It’s important to take a step back and reflect sometimes in order to regain the fire. I think Rocky Balboa said it best “The world ain’t all sunshine and rainbows. It’s a very mean and nasty place and I don’t care how tough you are it will beat you to your knees and keep you there permanently if you let it. You, me, or nobody is gonna hit as hard as life. But it ain’t about how hard ya hit. It’s about how hard you can get hit and keep moving forward. How much you can take and keep moving forward.”
*Que Eye of The Tiger*
Martha is currently 24 years old and was diagnosed with Cystic Fibrosis at birth. She is an outdoor recreation educator by day and an aspiring stand-up comedian at night. Martha maintains an active lifestyle by snowboarding, mountain biking, hiking and paddling on the beautiful lakes of Minnesota. She is also a former CFLF Recreation Grant Recipient. Follow her adventure on Instagram at @marthagarvey
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***Views expressed in the CFLF Blog are those of the bloggers themselves and not necessarily of the Cystic Fibrosis Lifestyle Foundation***
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