Nothing in life can be explained perfectly. That’s one of the first things that you learn in a statistical analysis class. You can add as many variables as you like, and you still will never explain the full phenomenon. Why am I the only one with Cystic Fibrosis in my family? Well, you can start by pulling out science and a Punnett square, explaining how traits are passed down through generations, etcetera, but you still never know the full explanation. Why did I make it twenty years before being hospitalized, when so many other kids with CF are admitted frequently?

For most of my life I’ve consumed the typical ‘CF diet’. You know the one, the one high in processed foods, fast foods, junk foods, high calorie food like products. There was a time in my life when lunch consisted of a bag of Dorito’s, a bottle of Coke, a Whatchamacallit, and a cheese roll the size of my head from the school cafeteria. For years my goal was just to consume as many calories as possible to help keep the weight on. Yet, I still struggled. I had a feeding tube placed when I was in the fourth grade and that sucker stuck around until I graduated high school.

Here is my first video documentation of a day in the life of. I apologize for the shakiness of the camera and the holes in the continuity, but it’s my first time. And I am bound to get better! The purpose of these is to show what cystic fibrosis patients deal with day in and out because a lot of what we do to take care of ourselves is behind closed doors.