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A Blueprint For Tackling The Transplant Process

April is Donate Life month. Raising awareness for organ donation has become one of my new life goals. Before this year, it was just another month to me. Yes, I knew about donate life. No, it didn’t affect me personally.

My mantra for today: I am happy, I am healthy, I am ALIVE, I am enough.

In a world filled with deadlines, important dates, schedules, and doctors’ appointments it’s important to find the humor in it all. I never know what a day will look like living with Cystic Fibrosis and I see it as an adventure. For example: last week started fine and normal… nothing out of the ordinary, then the chronic pain hit and for three days I couldn’t walk or move. 

Story of a CF Spouse: Coping with Loss

Shortly after my fiancée, Ashley, told me about her cystic fibrosis, we were engaged. Months later, she passed away, leaving me to figure out what I could have done differently and how to cope.

Although Ashley and I met in June of 2015, it wasn’t until we told each other “I love you” and began talking about moving in together that I learned she had cystic fibrosis. I had suspected she had some health condition long before, but I never suspected Ashley had CF because I didn’t know what it was. 

It's Our Choice

I know CFLF readers have come to expect me to blog about nutrition or share a new recipe, and that’s what I had planned for this post as well, until the last minute! Don’t fret, I promise I’ll be back to sharing recipes in future posts. 

We spent this past weekend in Moab, Utah with family. It was a much needed little getaway in one of the most beautiful places in the world. If you haven’t been to see all the red rock glory in Southern Utah, I highly recommend it! It’s absolutely breathtaking and there’s just nothing like it.

Preparing for Take-Off: Tips for traveling with little ones with CF

Today is the first day of Spring, and if you’re like me, you’ve got three little words on your brain. Spring Break, baby! 

In the days of old, that cheer would have likely been punctuated with a pint in hand and thoughts of a possible tattoo. But you’re a bit past that now. You’re in your (ahem) late thirties, you have two kids, and your Spring Break plans entail one overnight stay at a salt water pool in Southern Indiana. Can I get a woot woot?!

Laugh often, it clears the lungs

I believe there can be humor in any situation, even in your lowest moments. It's one of the most cliché sayings around, that "laughter is the best medicine" and maybe it's more of a coping mechanism than anything but I found comedy to be strangely therapeutic when it comes to living with Cystic Fibrosis and diabetes.

Luck of the Irish

As St. Patrick’s Day nears I remember my Irish/English Heritage. The shamrock has been used as a symbol of Ireland since the 18th century and is registered as a trademark by the Government of Ireland. Saint Patrick, Ireland's patron saint is said to have used it as a metaphor for the Christian Holy Trinity. Over several centuries there have been varied opinions by botanists and herbalists on the plant species of the shamrock. 

The Gift of Presence - 2018 Anti-Resolutions (Part 2 of 6)

Presence

In my last CFLF Blog post, I began a series focussed on my 'anti-resolutions' for 2018 with the hopes of sharing a different perspective on the widely accepted tradition of making promises to ourself about how we will improve our life in the coming year. For me, these comittments would have fizzled out by this time of year (only two months later) and I would struggle to even remember what my big New Years Resolutions even were, let alone actually keep to them. 

Keep Rolling

Scott on left with snowboard, his friend Bryan on the right wearing skis

(Read the text below, or scroll down to watch the video...)

My name is Scott Buchanan. I’m 35 and I have Cystic Fibrosis. Its been over 11 years since my last hospitalization.

The Beauty of Silence

After finishing college I had been anxious to throw myself into working, and if I couldn’t find a “real” job, I needed to go back to school soon. I was restless to prove myself to the world, believing my validity laid with a title, position, or a master’s. As 2017 carried on, my mental health dwindled and my pursuit of “validity” was failing.

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