I was admitted into the hospital six days ago with my lung function being the lowest it’s ever been in my life. I feel like I've been here for almost a month. Anyone who's ever spent a lot of time in the hospital knows that five hospital days feels closer to 30 non-hospital days. There are times in here when an hour literally feels like an entire day. I always think that I will be able to get things done while I'm here or that I'll at least read several books and catch up on e-mails, but every time I've been in here, the moment I am alone in my room with those primer gray walls, the burning fluorescent lights, and the constant beeping and blinking of machines, I am instantly transformed into a "patient", and the waiting game begins. There's something about being in a place among people who are all watching or waiting, surrounded by that familiar hum and buzz of a building that never rests that puts me in a certain state of mind. Even when I sleep, it’s not really sleep, it’s just a different kind of waiting patiently.
It wasn't until I went into the hospital that first time that I finally understood why the verb and the noun "patient" are the same. Having CF and knowing in the back of your mind that statistically you only have a certain number of years left, you want to move quickly through life to the next thing, you don't want to sit around waiting, or wasting time doing something you don't love. But at the same time you are always being (a) patient on some level. No matter how rushed and chaotic my day is I know for sure that two or (lately) often three times in my day everything will come to a screeching halt and I will sit by myself with the white noise of my vest and nebulizer and I will once again wait patiently as I try to make my body do what my brain wants it to do: which is get better. Even when I'm not technically "sick" I can never stop being aware on some level of the state of my breathing. Just like the whale, if I stop thinking about it I, too, will drown.
Yesterday my best friend came to visit and brought my godson Wolfy. As they were getting ready to go Wolfy said, "I want to stay and watch Erin get better". I looked over and he was watching me very intently, maybe hoping to see me rise out of bed and magically transform into someone healthier and able to go home. The thing is a lot of my time here feels a lot like that, waiting patiently for my body to heal, watching myself get better so I can go home, getting ready for that next big breath of fresh air.
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